Beyond one-off panels + July project updates

Mini-communities & Systems Thinking

We’ve all seen "one-and-done" advisory panels: you join a single session, share your experience, and never hear how it was used. While those sessions have their place, real impact requires systems thinking - looking at how an insight moves from a single conversation into healthcare decisions, trial designs, or care concepts.


When we build sustained mini-communities around projects rather than isolated check-ins, patient experts get to stay involved across multiple phases. This systemic approach ensures your words aren't just recorded in a slide deck, but actively bridge the gap into real-world action.


Practical Takeaway: When contributing to a project, think about the downstream system. Asking where your feedback goes next helps ensure your insights are framed so decision-makers can immediately put them into practice.

Insider Spotlight

Debbie on Systems Thinking & Bridging the Gap Between Insight and Action This month’s Insider Spotlight features someone many of you in our network have already collaborated with directly: Debbie Denison , Patient Experience Strategist at Merakoi! In this video interview, Debbie explains how she uses systems thinking to balance the needs of patients, clinicians, and pharmaceutical stakeholders…

Projects you could join

SmartShape — post-stroke and uncontrolled hypertension

Stroke / hypertension · Multi-country · Fieldwork running

Ongoing cohort work across multiple phases.

Severe acne safety panel (US)

Dermatology · United States · Focus groups running

Shape discussion guides and advisory direction from the start.

Inflammatory bowel disease safety panel (Spain)

IBD · Spain · Focus groups running

Shape discussion guides and advisory direction from the start.

Swiss gastric and gastro-oesophageal cancers

Oncology · Switzerland · Starting soon

Refine future care concepts and pre-habilitation support for families.

Hemophilia B educational brochure review

Haematology · Multi-country · Kicking off

Review and amend brochure materials for clinical relevance and clarity.

Your profile is how you get matched

Your Koispace profile is what we search when a project like the ones above needs someone with your experience. If it is out of date, we cannot match you.

Open Koispace and update my profile

What was worth your time this month?

Anything you'd tell us?

Past editions